Showing posts with label secrets. Show all posts
Showing posts with label secrets. Show all posts
Keeping secrets

Keeping secrets

Everyone keeps secrets - like how much I weigh. That is known to me, the scale, and my doctor's office. Its no one's business but mine and, truth be told, I really do not like the number but that's another story. There are other instances where keeping secrets is okay. Like a secret family recipe. Or a medical history.

These secrets are just information we want to keep private for whatever reason. It is fine that they are kept private and not shared indiscriminately.

Then there is the issue of secrets vs. transparency. This is when secrets are kept between groups where they should not be. Transparency is important between groups so that honesty leads and there can be understanding and appreciation of the other side. Without transparency, dishonesty can be suspected and with suspicion comes distrust. Which leads to bias and anger.

A big area where there is no transparency is in drug pricing. The pharmaceutical industry has a problem with this. Yesterday (was it yesterday or the day before?) I blogged about that 'gentleman' who jacked up the pricing of an existing drug for no given reason.

And for an industry already struggling with an image problem over the rising costs of prescription drugs, companies are going to have a hard time distancing themselves from one of the most controversial men in America.

The reason is a lack of transparency. Drug makers do not really want to explain how medicines are priced and, as a result, they have adopted an air of secrecy in which one cowboy can create havoc for an entire industry.

“The [Shkreli] episode is really an extreme manifestation of an attitude that has taken over the industry,” said Bernard Munos, a former corporate strategy adviser at Eli Lilly who is now a senior fellow at FasterCures, a medical research think tank. Most drug companies “are not raising prices by 5,000 percent, but large prices will leave patients with the same impression.”

It’s certainly true that funding drug discovery is expensive. The latest estimate of what it costs to get a drug out the door is, on average, $2.6 billion, according to a 2014 Tufts University report that was funded in part by industry.

Yet pharma leaders have done a poor job of explaining how the cost of R&D translates into a need for climbing prices or the sky-high sticker prices that are commonly set for new medicines from the get-go. Rather than opening their books, drug makers continually repeat the refrain about increasing development costs, and they avoid any candid discussions about cost that may invite more interest in setting price controls.

This is not a good thing. We need transparency to prevent more 'greed based' actions. Honesty and its partner transparency should rule. Secrecy and suspicion should be
0

Welcome to my life outside of cancerland

I do have a life outside of cancerland and being a patient. Actually I do lots of things but one of them is a direct result of having breast cancer. I knit and crochet. It helps pass the time between doctor appointments or waiting for test results.

Back in the fall of 2007, I must have been very whiny because a friend told me I needed a hobby. I started crocheting again. Then knitting. Then everyone in my family got a scarf, maybe even a bad one.Then I started giving them to my friends. Then I amassed a huge pile of scarves.

Somewhere in there a nice woman named, Lorna Miser, contacted me through my blog and wanted to quote me in her upcoming knitting book. She sent me some very nice yarn as a thank you. It's really nice yarn!

This week her book Knit Pink for Comfort, Gratitude, and Charity, showed up, with me quoted on page 43. Maybe my next hobby should be photography.

Last year I went out on a limb and tried having a table at a couple of craft shows. I did okay. I tried a couple more this year.

Now I am signed up for four more craft shows in the next 9 days. call me suicidal if you want. But please come visit me and buy scarves.

Then when I am done with my scarves I can finish the blanket for our bed that I started in July.

Thanks