Pie in the sky!

The lovely smart people at Komen have announced their new goal: To reduce breast cancer death's by 50% in the next decade. Um, this makes me think of the Deadby2020 people. 

Its so logical to to just come up with a great, yet unattainable, goal that makes an awesome headline so you get great publicity to get more donations for this unrealistic idea. 

Its all about the headlines. This is how the PR machines crank out buzz. Seriously. I used to work in marketing and PR and this is what they do. Now the organizations may think they are reasonable goals but if you think about them, they aren't. 

Can an organization decide that they are going to obliterate a disease over a ten year period that has been researched to death (no pun intended) for a very long time? Does that sound logical? No. Or how about another organization decides that they are going to cut the death rate in half from a disease that has been increasing mortality? If something is still rising, how can they just cut it in half? Again, not logical. Or feasible.

I am sure the people at the both Komen and NBC 2020 think they have come up with good ideas. But honestly I am not sure how realistic they are. And if I recall correctly didn't the urge to end breast cancer by 2020 start before 2010 and now they have just over 3 years to go and I haven't seen much progress. Yes I know there have been incremental advances but no solution yet.

These are basically your pie in the sky PR dreams to raise money.

Sympathetic or Over Sensitive?

When you were diagnosed with cancer, didn't other people with cancer come crawling out of the woodwork? You met all these people to talk to about cancer and help you through your diagnosis and treatment.  You got diagnosed so you can talk to other people in cancerland. That is fine, actually pretty cool. Its actually nice to bond with people who are coping or have coped with the surgeries, chemo, radiation and all that other 'fun' stuff.

But then, if someone you know knows someone else who was diagnosed with cancer, do you feel like they rush to tell you about it? Or are they asking questions of you to help their friend? Or are you just being hypersensitive?

I remember when I was in college a couple of years after my thyroid cancer diagnosis, a guy I knew was diagnosed with cancer. He was brought to a party by a mutual friend who brought him over to me so we could talk. He had a late stage brain cancer, only lived a few months longer, and was in a wheelchair. It was actually great to get to know him better but a very sad conversation.

Afterwards I started thinking (which I should never do, I know) and almost felt like I was expected to talk to him because we both had cancer so therefore we must know each other and be friends. Even though our cancers were completely different on all levels.

Since my breast cancer diagnosis, I have been more open about my medical history and talk to people all over all the time about cancer and other medical issues. I am happy to talking as many people who want to talk to me about medical crap (all cancer is crap).

I had a nightmare dream last night that I met up with an old friend from college (who's brother was married to someone I went to high school with) who was going out for a big dinner an hour before his last hope surgery for lung cancer at a time when I was also hospitalized. In my dream, I felt very stressed about my old friend (who was a melange of a bunch of old friends) being so sick and running out of options when I was hospitalized only for a minor issue and went home the next day. (And who goes out for dinner before surgery?)

When I woke up I felt I had been very put upon my by high school friend and her husband because I had cancer I was supposed to be the 'caretaker' of the sick friend. Then I started thinking about it (I promise I will try to stop thinking as much):

- am I the good sympathetic resident of cancerland; or,
- am I becoming oversensitive to the 'friend of a friend of a friend who was just diagnosed with cancer'; or,
- am I becoming a cynic about all medical crap?

Not so restful sleep

I have lots of problems sleeping. Its tough to have ailments which cause both fatigue and insomnia. So being the good patient that I am, I spoke with my doctors about getting some sleep aids. I was prescribed one and given the caution that it can cause weird dreams. And it does. Yowza!

I get the weirdest dreams with places I have lived piled up on top of each other, with different friends, family members, pets, etc all mixed in together. I wake up feeling all agitated. I cut the dose to half a pill. Then I tried adding some anti anxiety meds, which leave me in need of a nap.

This clearly isn't working. I wake up having slept but with a knot in my stomach. I need a new plan here.

So back to the damn doctor I go. As if I need another doctor appointment.

Dear Medical Researchers

Dear Medical Researchers:

This is what I want from you, besides a cure for cancer.

1. A medication with these side effects: weight loss, the ability to get 8 hours of consecutive sleep, and anti-depressant.
2. A cure for the common cold. This should be easy after a cure for cancer.
3. Medical tests that do not come with a 'pinch', a burning sensation, or being stuck with needles or any other 'ouchie'.
4. A dictionary that instantly translates 'doctor-speak', either the mumbo jumbo of big words or the vagueness of a non-answer, into normal human English.
5. Thrift - I want inexpensive treatments that will not line the pockets of pharmaceutical companies or others so that the term 'medical bankruptcy' will become obsolete.

That's not a very long list so it shouldn't be that difficult. 

Thank you.

A patient.